It’s only an estimate, but I’ve done the math. My father died while I was in a run-down hotel lobby in Newburgh, NY, picking up my race number for a half marathon that would begin in just under an hour.
Dad, at 62, was still an impressively healthy athlete. He swam a mile a day, rode his bike twice daily and played volleyball every weekend. One of the big regrets of his life was that he could not persuade me to take an interest in the game, despite the fact that I “had the shoulders for it.” That Saturday morning last June, while I was driving north from New York [...]
I have been sick for most of my life. This is both incredibly simple and incredibly complicated. Here is the short version: my immune system does not know how to protect me. My body attacks itself and I become inflamed. I am always in some type of pain.
I was 14 when I was diagnosed with Crohn’s disease, an inflammatory bowel disease with no known cure. Countless medications, several surgeries, a handful boyfriends, and a few periods of remission later, I was unexpectedly thrust into a new kind of sickness. At 27, without warning, I experienced crippling lower back and hip pain. After months of failed treatments and tests, I [...]
At the age of 29, my mother taught me how to bake a pie. That she was in her kitchen, proving how easy it was—how pleasurable it was to master this most domestic of tricks—was a shocker. “There’s more to life than getting married, you know!” she’d said when she caught me walking a Barbie down the aisle in a make believe game of wedding when I was young. “There’s art and work and travel,” she said slowly, clearly trying to make an impression.
But it all sounded boring, coming from her. I already knew I could become an astronaut, a lawyer, or president of the United States if I [...]